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    Last Updated: 10/30/2025

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    MediFind found 1547 doctor with experience in Emery-Dreifuss Muscular Dystrophy. Of these, 1224 are Experienced, 271 are Advanced, 50 are Distinguished and 2 are Elite.

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    1,547 providers found
      Elite in Emery-Dreifuss Muscular Dystrophy
      Elite in Emery-Dreifuss Muscular Dystrophy
      London, ENG, GB 

      Catherine Shanahan practices in London, United Kingdom. Ms. Shanahan is rated as an Elite expert by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Calcinosis, Emery-Dreifuss Muscular Dystrophy, Dilated Cardiomyopathy (DCM), and Progeria.

      Elite in Emery-Dreifuss Muscular Dystrophy
      Elite in Emery-Dreifuss Muscular Dystrophy
      Warsaw, MZ, PL 

      Agnieszka Pilarczyk-Madej practices in Warsaw, Poland. Ms. Pilarczyk-Madej is rated as an Elite expert by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are X-Linked Dominant Scapuloperoneal Myopathy, Emery-Dreifuss Muscular Dystrophy, X-Linked Cardiac Valvular Dysplasia, and Limb-Girdle Muscular Dystrophy Type 1A.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Distinguished in Emery-Dreifuss Muscular Dystrophy
      Neurology | Pediatrics | Pediatric Neurology
      Distinguished in Emery-Dreifuss Muscular Dystrophy
      Neurology | Pediatrics | Pediatric Neurology

      State University Of Iowa

      200 Hawkins Dr, 
      Iowa City, IA 
      Languages Spoken:
      English
      Accepting New Patients

      Katherine Mathews is a Neurologist and a Pediatrics provider in Iowa City, Iowa. Dr. Mathews is rated as a Distinguished provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Limb-Girdle Muscular Dystrophy Type 2I, Limb-Girdle Muscular Dystrophy, Dystrophinopathy, and Friedreich Ataxia. Dr. Mathews is currently accepting new patients.

      Learn about our expert tiers
      Sam Fatoorehchi
      Advanced in Emery-Dreifuss Muscular Dystrophy
      Family Medicine
      Advanced in Emery-Dreifuss Muscular Dystrophy
      Family Medicine

      Advocate Medical Group Primary Care

      Chicago, IL 
      Languages Spoken:
      English

      Sam Fatoorehchi is a primary care provider, practicing in Family Medicine in Chicago, Illinois. Dr. Fatoorehchi is rated as an Advanced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Miyoshi Myopathy, Distal Myopathy 2, Oculopharyngeal Muscular Dystrophy, and Emery-Dreifuss Muscular Dystrophy.

      Maryjane A. Farr
      Advanced in Emery-Dreifuss Muscular Dystrophy
      Advanced Heart Failure and Transplant Cardiology | Cardiology
      Advanced in Emery-Dreifuss Muscular Dystrophy
      Advanced Heart Failure and Transplant Cardiology | Cardiology

      University Of Texas Southwestern Medical Center At Dallas

      5939 Harry Hines Blvd, 
      Dallas, TX 
      Languages Spoken:
      English

      Maryjane Farr is an Advanced Heart Failure and Transplant Cardiologist and a Cardiologist in Dallas, Texas. Dr. Farr is rated as an Advanced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Heart Failure, Cardiogenic Shock, Cardiomyopathy, Pulmonary Edema, and Heart Transplant.

      Advanced in Emery-Dreifuss Muscular Dystrophy
      Neurology
      Advanced in Emery-Dreifuss Muscular Dystrophy
      Neurology

      University Of Vermont Medical Center Inc

      790 College Pkwy, 
      Colchester, VT 
      Languages Spoken:
      English, Hindi
      Offers Telehealth

      Rup Tandan is a Neurologist in Colchester, Vermont. Dr. Tandan is rated as an Advanced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Myasthenia Gravis, Dysferlinopathy, Primary Lateral Sclerosis, and Thymectomy.

      Advanced in Emery-Dreifuss Muscular Dystrophy
      Advanced in Emery-Dreifuss Muscular Dystrophy

      State University Of Iowa

      200 Hawkins Dr, 
      Iowa City, IA 
      Languages Spoken:
      English
      Accepting New Patients

      Andrea Swenson is a Neurologist in Iowa City, Iowa. Dr. Swenson is rated as an Advanced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Myasthenia Gravis, Spinal Muscular Atrophy (SMA), and Rhizotomy. Dr. Swenson is currently accepting new patients.

      Advanced in Emery-Dreifuss Muscular Dystrophy
      Advanced in Emery-Dreifuss Muscular Dystrophy
      222 Piedmont Ave, Suite 3200, 
      Cincinnati, OH 
      Languages Spoken:
      English
      Accepting New Patients

      John Quinlan is a Neurologist in Cincinnati, Ohio. Dr. Quinlan is rated as an Advanced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Myasthenia Gravis, Inclusion Body Myositis, Distal Myopathy 2, and X-Linked Dominant Scapuloperoneal Myopathy. Dr. Quinlan is currently accepting new patients.

      Daniel P. Judge
      Experienced in Emery-Dreifuss Muscular Dystrophy
      Advanced Heart Failure and Transplant Cardiology | Cardiology
      Experienced in Emery-Dreifuss Muscular Dystrophy
      Advanced Heart Failure and Transplant Cardiology | Cardiology

      University Medical Associates Of The Medical University Of South Carol

      171 Ashley Ave, 
      Charleston, SC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Daniel Judge is an Advanced Heart Failure and Transplant Cardiologist and a Cardiologist in Charleston, South Carolina. Dr. Judge is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Cardiomyopathy, Cardiac Amyloidosis, Transthyretin Amyloid Cardiomyopathy, Heart Transplant, and Cardiac Ablation. Dr. Judge is currently accepting new patients.

      Dukjin Im
      Experienced in Emery-Dreifuss Muscular Dystrophy
      Pediatrics
      Experienced in Emery-Dreifuss Muscular Dystrophy
      Pediatrics

      Levine Children's Hospital

      1000 Blythe Blvd., 
      Charlotte, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Dukjin Im is a Pediatrics provider in Charlotte, North Carolina. Dr. Im is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Cerebral Palsy, Spasticity, Spastic Diplegia Infantile Type, and Walker-Warburg Syndrome. Dr. Im is currently accepting new patients.

      Shunichi Homma
      Distinguished in Emery-Dreifuss Muscular Dystrophy
      Distinguished in Emery-Dreifuss Muscular Dystrophy

      Trustees Of Columbia University In The City Of New York

      622 W 168th St, 
      New York, NY 
      Languages Spoken:
      English

      Shunichi Homma is a Cardiologist in New York, New York. Dr. Homma is rated as a Distinguished provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Patent Foramen Ovale, Atrial Septal Defect (ASD), Emery-Dreifuss Muscular Dystrophy, Parathyroidectomy, and Patent Foramen Ovale Repair.

      Experienced in Emery-Dreifuss Muscular Dystrophy
      Family Medicine
      Experienced in Emery-Dreifuss Muscular Dystrophy
      Family Medicine
      15812 E Indiana Ave, 
      Spokane Valley, WA 
      Languages Spoken:
      English, Dutch, Filipino, Korean
      Accepting New Patients
      Offers Telehealth

      Jordan Espiritu is a primary care provider, practicing in Family Medicine in Spokane Valley, Washington. Dr. Espiritu is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Familial Combined Hyperlipidemia, Xanthoma, Cirrhosis, and Type 2 Diabetes (T2D). Dr. Espiritu is currently accepting new patients.

      Experienced in Emery-Dreifuss Muscular Dystrophy
      Neurology | Neurosurgery
      Experienced in Emery-Dreifuss Muscular Dystrophy
      Neurology | Neurosurgery

      Nova Southeastern University Inc

      3321 College Ave, Suite 405, 
      Davie, FL 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Eduardo Locatelli is a Neurologist and a Neurosurgery provider in Davie, Florida. Dr. Locatelli is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Spinal and Bulbar Muscular Atrophy, and Spinal Muscular Atrophy Type 3. Dr. Locatelli is currently accepting new patients.

      Experienced in Emery-Dreifuss Muscular Dystrophy
      Family Medicine
      Experienced in Emery-Dreifuss Muscular Dystrophy
      Family Medicine

      Prisma Health University Medical Group

      877 W Faris Rd, Suite A, 
      Greenville, SC 
      Languages Spoken:
      English
      Accepting New Patients

      Joel Amidon is a primary care provider, practicing in Family Medicine in Greenville, South Carolina. Dr. Amidon is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Delta-Sarcoglycanopathy, Miyoshi Myopathy, X-Linked Dominant Scapuloperoneal Myopathy, and Oculopharyngeal Muscular Dystrophy. Dr. Amidon is currently accepting new patients.

      Experienced in Emery-Dreifuss Muscular Dystrophy
      Experienced in Emery-Dreifuss Muscular Dystrophy
      3300 Main Street, 3rd Floor Suite C&d, 
      Springfield, MA 
      Languages Spoken:
      English

      Meghan Hickey is a Neurologist in Springfield, Massachusetts. Dr. Hickey is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Seizures, Migraine, Autosomal Dominant Partial Epilepsy with Auditory Features, and Tension Headache.

      Experienced in Emery-Dreifuss Muscular Dystrophy
      Pediatric Cardiology | Cardiology | Pediatrics
      Experienced in Emery-Dreifuss Muscular Dystrophy
      Pediatric Cardiology | Cardiology | Pediatrics

      University Hospitals Medical Group Inc

      11100 Euclid Ave, 
      Cleveland, OH 
      Languages Spoken:
      English, Portuguese
      Accepting New Patients

      Maria Arruda is a Pediatric Cardiologist and a Cardiologist in Cleveland, Ohio. Dr. Arruda is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Sternal Cleft, Cor Triatriatum, Congenital Contractural Arachnodactyly, Ventricular Septal Defects, and Cardiac Ablation. Dr. Arruda is currently accepting new patients.

      Experienced in Emery-Dreifuss Muscular Dystrophy
      Experienced in Emery-Dreifuss Muscular Dystrophy

      Baystate Medical Practices Inc

      21 Dwight Rd, Suite 204, 
      Longmeadow, MA 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Barry Rodstein is a Physiatrist in Longmeadow, Massachusetts. Dr. Rodstein is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Hemiplegia, Spasticity, Primary Intestinal Lymphangiectasia, and Meige Disease. Dr. Rodstein is currently accepting new patients.

      Experienced in Emery-Dreifuss Muscular Dystrophy
      Cardiology | Advanced Heart Failure and Transplant Cardiology
      Experienced in Emery-Dreifuss Muscular Dystrophy
      Cardiology | Advanced Heart Failure and Transplant Cardiology

      Holy Cross Hospital Inc

      4725 N Federal Hwy Pathology Department, Holy Cross Medical Group, 
      Ft Lauderdale, FL 
      Languages Spoken:
      English, Hindi, Spanish
      Accepting New Patients
      Offers Telehealth

      Joshua Larned is a Cardiologist and an Advanced Heart Failure and Transplant Cardiologist in Ft Lauderdale, Florida. Dr. Larned is rated as an Experienced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Coronary Heart Disease, Atrial Fibrillation, Angina, and Atherosclerosis. Dr. Larned is currently accepting new patients.

      Distinguished in Emery-Dreifuss Muscular Dystrophy
      Distinguished in Emery-Dreifuss Muscular Dystrophy
      Banacha 1a Str, 
      Warsaw, MZ, PL 

      Michal Marchel practices in Warsaw, Poland. Marchel is rated as a Distinguished expert by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Their top areas of expertise are Emery-Dreifuss Muscular Dystrophy, X-Linked Dominant Scapuloperoneal Myopathy, Dilated Cardiomyopathy (DCM), Cardiac Ablation, and Transcatheter Aortic Valve Replacement (TAVR).

      Distinguished in Emery-Dreifuss Muscular Dystrophy
      Distinguished in Emery-Dreifuss Muscular Dystrophy
      Centre De Référence De Pathologie Neuromusculaire Paris Est, 
      EE 

      Gisele Bonne practices in Estonia. Ms. Bonne is rated as a Distinguished expert by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are X-Linked Dominant Scapuloperoneal Myopathy, Emery-Dreifuss Muscular Dystrophy, Cramp-Fasciculation Syndrome, and Dilated Cardiomyopathy (DCM).

      Showing 1-20 of 1,547

      Last Updated: 10/30/2025

      What is the definition of Emery-Dreifuss Muscular Dystrophy?

      Emery-Dreifuss muscular dystrophy is a condition that primarily affects muscles used for movement (skeletal muscles) and the heart (cardiac muscle). Among the earliest features of this disorder are joint deformities called contractures. Contractures restrict the movement of certain joints, most often the elbows, ankles, and neck, and usually become noticeable in early childhood. Most affected individuals also experience muscle weakness and wasting that worsen slowly over time, beginning in muscles of the upper arms and lower legs and later also affecting muscles in the shoulders and hips.

      When should I see an Emery-Dreifuss Muscular Dystrophy doctor near me?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Emery-Dreifuss Muscular Dystrophy doctor near me?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Emery-Dreifuss Muscular Dystrophy doctors near me?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Emery-Dreifuss Muscular Dystrophy doctors near me?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Emery-Dreifuss Muscular Dystrophy doctor near me?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Emery-Dreifuss Muscular Dystrophy doctor search results page. 

      Why is it important to get a second opinion from a different Emery-Dreifuss Muscular Dystrophy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Emery-Dreifuss Muscular Dystrophy doctor near me?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Emery-Dreifuss Muscular Dystrophy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Emery-Dreifuss Muscular Dystrophy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Emery-Dreifuss Muscular Dystrophy doctors near me?

      Look for the filter feature on the left side of the Emery-Dreifuss Muscular Dystrophy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Emery-Dreifuss Muscular Dystrophy doctor that offers video calls?

      Look for the filter feature on the left-side of the Emery-Dreifuss Muscular Dystrophy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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