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    Last Updated: 01/09/2026

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    MediFind found 1528 doctor with experience in Emery-Dreifuss Muscular Dystrophy. Of these, 1210 are Experienced, 258 are Advanced, 58 are Distinguished and 2 are Elite.

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    1,528 providers found
      Sam Fatoorehchi
      Advanced in Emery-Dreifuss Muscular Dystrophy
      Family Medicine
      Advanced in Emery-Dreifuss Muscular Dystrophy
      Family Medicine

      Advocate Medical Group Primary Care

      Chicago, IL 
      Languages Spoken:
      English

      Sam Fatoorehchi is a primary care provider, practicing in Family Medicine in Chicago, Illinois. Dr. Fatoorehchi is rated as an Advanced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Miyoshi Myopathy, Delta-Sarcoglycanopathy, Walker-Warburg Syndrome, and Fukuyama Type Muscular Dystrophy.

      Elite in Emery-Dreifuss Muscular Dystrophy
      Elite in Emery-Dreifuss Muscular Dystrophy
      London, ENG, GB 

      Catherine Shanahan practices in London, United Kingdom. Ms. Shanahan is rated as an Elite expert by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Calcinosis, Emery-Dreifuss Muscular Dystrophy, Dilated Cardiomyopathy (DCM), and Progeria.

      Elite in Emery-Dreifuss Muscular Dystrophy
      Elite in Emery-Dreifuss Muscular Dystrophy
      Warsaw, MZ, PL 

      Agnieszka Pilarczyk-Madej practices in Warsaw, Poland. Ms. Pilarczyk-Madej is rated as an Elite expert by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Emery-Dreifuss Muscular Dystrophy, X-Linked Dominant Scapuloperoneal Myopathy, X-Linked Cardiac Valvular Dysplasia, and Limb-Girdle Muscular Dystrophy Type 1A.

      Learn about our expert tiers
      Distinguished in Emery-Dreifuss Muscular Dystrophy
      Neurology | Pediatrics | Pediatric Neurology
      Distinguished in Emery-Dreifuss Muscular Dystrophy
      Neurology | Pediatrics | Pediatric Neurology

      State University Of Iowa

      200 Hawkins Dr, 
      Iowa City, IA 
      Languages Spoken:
      English
      Accepting New Patients

      Katherine Mathews is a Neurologist and a Pediatrics provider in Iowa City, Iowa. Dr. Mathews is rated as a Distinguished provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Limb-Girdle Muscular Dystrophy Type 2I, Limb-Girdle Muscular Dystrophy, Dystrophinopathy, and Friedreich Ataxia. Dr. Mathews is currently accepting new patients.

      Shunichi Homma
      Distinguished in Emery-Dreifuss Muscular Dystrophy
      Internal Medicine
      Distinguished in Emery-Dreifuss Muscular Dystrophy
      Internal Medicine

      New York-Presbyterian/Columbia University Medical Center

      161 Fort Washington Ave, 
      New York,, NY 
      Languages Spoken:
      English

      Shunichi Homma is an Internal Medicine provider in New York,, New York. Dr. Homma is rated as a Distinguished provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Patent Foramen Ovale, Atrial Septal Defect (ASD), Emery-Dreifuss Muscular Dystrophy, Parathyroidectomy, and Patent Foramen Ovale Repair.

      Maryjane A. Farr
      Advanced in Emery-Dreifuss Muscular Dystrophy
      Advanced Heart Failure and Transplant Cardiology | Cardiology
      Advanced in Emery-Dreifuss Muscular Dystrophy
      Advanced Heart Failure and Transplant Cardiology | Cardiology

      University Of Texas Southwestern Medical Center At Dallas

      5939 Harry Hines Blvd, 
      Dallas, TX 
      Languages Spoken:
      English

      Maryjane Farr is an Advanced Heart Failure and Transplant Cardiologist and a Cardiologist in Dallas, Texas. Dr. Farr is rated as an Advanced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Heart Failure, Cardiogenic Shock, Cardiomyopathy, Pulmonary Edema, and Heart Transplant.

      Distinguished in Emery-Dreifuss Muscular Dystrophy
      Distinguished in Emery-Dreifuss Muscular Dystrophy

      Penn Neuroscience Center - Neurology

      330 South 9th Street, 3rd Floor, 
      Philadelphia, PA 
      Languages Spoken:
      English
      Accepting New Patients

      Lauren Elman is a Neurologist in Philadelphia, Pennsylvania. Dr. Elman is rated as a Distinguished provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Myotonic Dystrophy, and Myotonic Dystrophy Type 2. Dr. Elman is currently accepting new patients.

      Distinguished in Emery-Dreifuss Muscular Dystrophy
      Distinguished in Emery-Dreifuss Muscular Dystrophy

      Office

      355 W 16th St Ste 3200, 
      Indianapolis, IN 
      Languages Spoken:
      English
      Offers Telehealth

      Cynthia Bodkin is a Neurologist in Indianapolis, Indiana. Dr. Bodkin is rated as a Distinguished provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Spinal Muscular Atrophy (SMA), Spinal Muscular Atrophy Type 3, and Spinal and Bulbar Muscular Atrophy.

      Distinguished in Emery-Dreifuss Muscular Dystrophy
      Distinguished in Emery-Dreifuss Muscular Dystrophy

      University Andrology Lab LLC

      3303 S Bond Ave, 
      Portland, OR 
      Languages Spoken:
      English
      Offers Telehealth

      Nizar Chahin is a Neurologist in Portland, Oregon. Dr. Chahin is rated as a Distinguished provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Inclusion Body Myositis, Myasthenia Gravis, Nemaline Myopathy, and Lambert-Eaton Syndrome.

      Distinguished in Emery-Dreifuss Muscular Dystrophy
      Distinguished in Emery-Dreifuss Muscular Dystrophy

      Geisinger Medical Center

      100 N Academy Ave, 
      Danville, PA 
      Languages Spoken:
      English
      Offers Telehealth

      Scott Friedenberg is a Neurologist in Danville, Pennsylvania. Dr. Friedenberg is rated as a Distinguished provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Myasthenia Gravis, Chronic Polyradiculoneuritis, Miller-Fisher Syndrome, and Guillain-Barre Syndrome.

      Advanced in Emery-Dreifuss Muscular Dystrophy
      Neurology
      Advanced in Emery-Dreifuss Muscular Dystrophy
      Neurology

      University Of Vermont Medical Center Inc

      790 College Pkwy, 
      Colchester, VT 
      Languages Spoken:
      English, Hindi
      Offers Telehealth

      Rup Tandan is a Neurologist in Colchester, Vermont. Dr. Tandan is rated as an Advanced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Myasthenia Gravis, Dysferlinopathy, Primary Lateral Sclerosis, and Thymectomy.

      Advanced in Emery-Dreifuss Muscular Dystrophy
      Advanced in Emery-Dreifuss Muscular Dystrophy

      State University Of Iowa

      200 Hawkins Dr, 
      Iowa City, IA 
      Languages Spoken:
      English
      Accepting New Patients

      Andrea Swenson is a Neurologist in Iowa City, Iowa. Dr. Swenson is rated as an Advanced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Myasthenia Gravis, Spinal Muscular Atrophy (SMA), and Rhizotomy. Dr. Swenson is currently accepting new patients.

      Advanced in Emery-Dreifuss Muscular Dystrophy
      Advanced in Emery-Dreifuss Muscular Dystrophy
      222 Piedmont Ave, Suite 3200, 
      Cincinnati, OH 
      Languages Spoken:
      English
      Accepting New Patients

      John Quinlan is a Neurologist in Cincinnati, Ohio. Dr. Quinlan is rated as an Advanced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Myasthenia Gravis, Inclusion Body Myositis, Distal Myopathy 2, and Miyoshi Myopathy. Dr. Quinlan is currently accepting new patients.

      Anthony A. Amato
      Distinguished in Emery-Dreifuss Muscular Dystrophy
      Distinguished in Emery-Dreifuss Muscular Dystrophy

      Brigham And Women's Hospital, Neurosciences Center

      60 Fenwood Road, Hale Building For Transformative Medicine, 1st Floor, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Anthony Amato is a Neurologist in Boston, Massachusetts. Dr. Amato is rated as a Distinguished provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Inclusion Body Myositis, Myositis, Polymyositis, Thymectomy, and Gastrostomy. Dr. Amato is currently accepting new patients.

      Margherita Milone
      Advanced in Emery-Dreifuss Muscular Dystrophy
      Advanced in Emery-Dreifuss Muscular Dystrophy

      MN - Neuro

      200 1st St SW, 
      Rochester, MN 
      Languages Spoken:
      English
      Offers Telehealth

      Margherita Milone is a Neurologist in Rochester, Minnesota. Dr. Milone is rated as an Advanced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Progressive External Ophthalmoplegia, Necrotizing Myopathy (NM), Nemaline Myopathy, and Congenital Fiber-Type Disproportion.

      Vern Juel
      Advanced in Emery-Dreifuss Muscular Dystrophy
      Neurology
      Advanced in Emery-Dreifuss Muscular Dystrophy
      Neurology

      Private Diagnostic Clinic PLLC

      40 Duke Medicine Cir, 
      Durham, NC 
      Languages Spoken:
      English
      Offers Telehealth

      Vern Juel is a Neurologist in Durham, North Carolina. Dr. Juel is rated as an Advanced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Myasthenia Gravis, Lambert-Eaton Syndrome, Inclusion Body Myositis, Meige Syndrome, and Thymectomy.

      Meghann Mckane
      Advanced in Emery-Dreifuss Muscular Dystrophy
      Pediatric Cardiology
      Advanced in Emery-Dreifuss Muscular Dystrophy
      Pediatric Cardiology

      Children's Healthcare Of Atlanta Cardiology - Dalton

      1504 North Thornton Avenue, Suite 105, 
      Dalton, GA 
      Languages Spoken:
      English
      Accepting New Patients

      Meghann Mckane is a Pediatric Cardiologist in Dalton, Georgia. Dr. Mckane is rated as an Advanced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Duchenne Muscular Dystrophy, Ventricular Septal Defects, Heart Murmurs, Pulmonary Valve Stenosis, and Heart Transplant. Dr. Mckane is currently accepting new patients.

      Paul T. Twydell
      Advanced in Emery-Dreifuss Muscular Dystrophy
      Neuroradiology | Neuromusculoskeletal Medicine | Neurology
      Advanced in Emery-Dreifuss Muscular Dystrophy
      Neuroradiology | Neuromusculoskeletal Medicine | Neurology

      Corewell Health Grand Rapids Hospitals Neurology - 2750 E Beltline Ave NE

      2750 East Beltline Avenue Northeast, 
      Grand Rapids, MI 
      Experience:
      26+ years
      Languages Spoken:
      English
      Accepting New Patients

      Paul Twydell is a Neuromusculoskeletal Medicine specialist and a Neurologist in Grand Rapids, Michigan. Dr. Twydell has been practicing medicine for over 26 years and is rated as an Advanced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Myasthenia Gravis, Monomelic Amyotrophy, Chronic Inflammatory Demyelinating Polyneuropathy, and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease). Dr. Twydell is currently accepting new patients.

      Daniel Menkes
      Advanced in Emery-Dreifuss Muscular Dystrophy
      Advanced in Emery-Dreifuss Muscular Dystrophy

      Daniel Menkes MD

      3555 W 13 Mile Rd Ste N120, 
      Royal Oak, MI 
      Experience:
      38+ years
      Languages Spoken:
      English

      Daniel Menkes is a Neurologist in Royal Oak, Michigan. Dr. Menkes has been practicing medicine for over 38 years and is rated as an Advanced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Chronic Inflammatory Demyelinating Polyneuropathy, Myotonic Dystrophy, Myotonic Dystrophy Type 2, and Paramyotonia Congenita.

      Andreas Barth
      Advanced in Emery-Dreifuss Muscular Dystrophy
      Cardiac Electrophysiology | Cardiology
      Advanced in Emery-Dreifuss Muscular Dystrophy
      Cardiac Electrophysiology | Cardiology

      Greater Baltimore Medical Center

      6569 North Charles Street, Pavilion West STE 600, Pavilion West STE 600, 
      Baltimore, MD 
      Languages Spoken:
      English, French, German, Greek, Romanian
      Offers Telehealth

      Dr. Andreas S. Barth is an Associate Professor in the Division of Cardiology at the Johns Hopkins School of Medicine and Director of the Center for Inherited Heart Diseases. His clinical work focuses on clinical cardiac electrophysiology with a specific focus on inherited arrhythmia syndromes and channelopathies, including long QT syndrome, Brugada syndrome, CPVT and arrhythmogenic cardiomyopathies. Additionally, Dr. Barth participates in a multidisciplinary clinic at Kennedy Krieger Institute providing Cardiology care to patients with muscular dystrophies and mitochondrial disease. Dr. Barth performs pacemaker and defibrillator implantation and complex catheter ablations for atrial and ventricular arrhythmias. His basic research lab explores the relationship between metabolic and arrhythmogenic ion channel remodeling in heart failure and myotonic dystrophy. Dr. Barth earned a combined doctor of medicine and doctor of philosophy from the Ludwig-Maximilians-University in Munich, Germany. He joined the Johns Hopkins faculty in 2016. He has been recognized with the First Prize for the Stanley L. Blumenthal Cardiology Research Award in Clinical Science in the Division of Cardiology at Johns Hopkins Hospital, and as a Young Investigator Award Finalist of the American Heart Association and Heart Rhythm Society. Dr. Barth is rated as an Advanced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Cardiomyopathy, Arrhythmias, Heart Attack, Cardiac Ablation, and Pacemaker Implantation.

      Showing 1-20 of 1,528

      Last Updated: 01/09/2026

      What is the definition of Emery-Dreifuss Muscular Dystrophy?

      Emery-Dreifuss muscular dystrophy is a condition that primarily affects muscles used for movement (skeletal muscles) and the heart (cardiac muscle). Among the earliest features of this disorder are joint deformities called contractures. Contractures restrict the movement of certain joints, most often the elbows, ankles, and neck, and usually become noticeable in early childhood. Most affected individuals also experience muscle weakness and wasting that worsen slowly over time, beginning in muscles of the upper arms and lower legs and later also affecting muscles in the shoulders and hips.

      When should I see an Emery-Dreifuss Muscular Dystrophy doctor near me?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Emery-Dreifuss Muscular Dystrophy doctor near me?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Emery-Dreifuss Muscular Dystrophy doctors near me?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Emery-Dreifuss Muscular Dystrophy doctors near me?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Emery-Dreifuss Muscular Dystrophy doctor near me?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Emery-Dreifuss Muscular Dystrophy doctor search results page. 

      Why is it important to get a second opinion from a different Emery-Dreifuss Muscular Dystrophy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Emery-Dreifuss Muscular Dystrophy doctor near me?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Emery-Dreifuss Muscular Dystrophy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Emery-Dreifuss Muscular Dystrophy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Emery-Dreifuss Muscular Dystrophy doctors near me?

      Look for the filter feature on the left side of the Emery-Dreifuss Muscular Dystrophy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Emery-Dreifuss Muscular Dystrophy doctor that offers video calls?

      Look for the filter feature on the left-side of the Emery-Dreifuss Muscular Dystrophy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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