MediFind found 1528 doctor with experience in Emery-Dreifuss Muscular Dystrophy. Of these, 1210 are Experienced, 258 are Advanced, 58 are Distinguished and 2 are Elite.
Advocate Medical Group Primary Care
Sam Fatoorehchi is a primary care provider, practicing in Family Medicine in Chicago, Illinois. Dr. Fatoorehchi is rated as an Advanced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Miyoshi Myopathy, Delta-Sarcoglycanopathy, Walker-Warburg Syndrome, and Fukuyama Type Muscular Dystrophy.
Catherine Shanahan practices in London, United Kingdom. Ms. Shanahan is rated as an Elite expert by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Calcinosis, Emery-Dreifuss Muscular Dystrophy, Dilated Cardiomyopathy (DCM), and Progeria.
Agnieszka Pilarczyk-Madej practices in Warsaw, Poland. Ms. Pilarczyk-Madej is rated as an Elite expert by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Emery-Dreifuss Muscular Dystrophy, X-Linked Dominant Scapuloperoneal Myopathy, X-Linked Cardiac Valvular Dysplasia, and Limb-Girdle Muscular Dystrophy Type 1A.
State University Of Iowa
Katherine Mathews is a Neurologist and a Pediatrics provider in Iowa City, Iowa. Dr. Mathews is rated as a Distinguished provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Limb-Girdle Muscular Dystrophy Type 2I, Limb-Girdle Muscular Dystrophy, Dystrophinopathy, and Friedreich Ataxia. Dr. Mathews is currently accepting new patients.
New York-Presbyterian/Columbia University Medical Center
Shunichi Homma is an Internal Medicine provider in New York,, New York. Dr. Homma is rated as a Distinguished provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Patent Foramen Ovale, Atrial Septal Defect (ASD), Emery-Dreifuss Muscular Dystrophy, Parathyroidectomy, and Patent Foramen Ovale Repair.
University Of Texas Southwestern Medical Center At Dallas
Maryjane Farr is an Advanced Heart Failure and Transplant Cardiologist and a Cardiologist in Dallas, Texas. Dr. Farr is rated as an Advanced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Heart Failure, Cardiogenic Shock, Cardiomyopathy, Pulmonary Edema, and Heart Transplant.
Penn Neuroscience Center - Neurology
Lauren Elman is a Neurologist in Philadelphia, Pennsylvania. Dr. Elman is rated as a Distinguished provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Myotonic Dystrophy, and Myotonic Dystrophy Type 2. Dr. Elman is currently accepting new patients.
Office
Cynthia Bodkin is a Neurologist in Indianapolis, Indiana. Dr. Bodkin is rated as a Distinguished provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Spinal Muscular Atrophy (SMA), Spinal Muscular Atrophy Type 3, and Spinal and Bulbar Muscular Atrophy.
University Andrology Lab LLC
Nizar Chahin is a Neurologist in Portland, Oregon. Dr. Chahin is rated as a Distinguished provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Inclusion Body Myositis, Myasthenia Gravis, Nemaline Myopathy, and Lambert-Eaton Syndrome.
Geisinger Medical Center
Scott Friedenberg is a Neurologist in Danville, Pennsylvania. Dr. Friedenberg is rated as a Distinguished provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Myasthenia Gravis, Chronic Polyradiculoneuritis, Miller-Fisher Syndrome, and Guillain-Barre Syndrome.
University Of Vermont Medical Center Inc
Rup Tandan is a Neurologist in Colchester, Vermont. Dr. Tandan is rated as an Advanced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Myasthenia Gravis, Dysferlinopathy, Primary Lateral Sclerosis, and Thymectomy.
State University Of Iowa
Andrea Swenson is a Neurologist in Iowa City, Iowa. Dr. Swenson is rated as an Advanced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Myasthenia Gravis, Spinal Muscular Atrophy (SMA), and Rhizotomy. Dr. Swenson is currently accepting new patients.
John Quinlan is a Neurologist in Cincinnati, Ohio. Dr. Quinlan is rated as an Advanced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Myasthenia Gravis, Inclusion Body Myositis, Distal Myopathy 2, and Miyoshi Myopathy. Dr. Quinlan is currently accepting new patients.
Brigham And Women's Hospital, Neurosciences Center
Anthony Amato is a Neurologist in Boston, Massachusetts. Dr. Amato is rated as a Distinguished provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Inclusion Body Myositis, Myositis, Polymyositis, Thymectomy, and Gastrostomy. Dr. Amato is currently accepting new patients.
MN - Neuro
Margherita Milone is a Neurologist in Rochester, Minnesota. Dr. Milone is rated as an Advanced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Progressive External Ophthalmoplegia, Necrotizing Myopathy (NM), Nemaline Myopathy, and Congenital Fiber-Type Disproportion.
Private Diagnostic Clinic PLLC
Vern Juel is a Neurologist in Durham, North Carolina. Dr. Juel is rated as an Advanced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Myasthenia Gravis, Lambert-Eaton Syndrome, Inclusion Body Myositis, Meige Syndrome, and Thymectomy.
Children's Healthcare Of Atlanta Cardiology - Dalton
Meghann Mckane is a Pediatric Cardiologist in Dalton, Georgia. Dr. Mckane is rated as an Advanced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. Her top areas of expertise are Duchenne Muscular Dystrophy, Ventricular Septal Defects, Heart Murmurs, Pulmonary Valve Stenosis, and Heart Transplant. Dr. Mckane is currently accepting new patients.
Corewell Health Grand Rapids Hospitals Neurology - 2750 E Beltline Ave NE
Paul Twydell is a Neuromusculoskeletal Medicine specialist and a Neurologist in Grand Rapids, Michigan. Dr. Twydell has been practicing medicine for over 26 years and is rated as an Advanced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Myasthenia Gravis, Monomelic Amyotrophy, Chronic Inflammatory Demyelinating Polyneuropathy, and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease). Dr. Twydell is currently accepting new patients.
Daniel Menkes MD
Daniel Menkes is a Neurologist in Royal Oak, Michigan. Dr. Menkes has been practicing medicine for over 38 years and is rated as an Advanced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Chronic Inflammatory Demyelinating Polyneuropathy, Myotonic Dystrophy, Myotonic Dystrophy Type 2, and Paramyotonia Congenita.
Greater Baltimore Medical Center
Dr. Andreas S. Barth is an Associate Professor in the Division of Cardiology at the Johns Hopkins School of Medicine and Director of the Center for Inherited Heart Diseases. His clinical work focuses on clinical cardiac electrophysiology with a specific focus on inherited arrhythmia syndromes and channelopathies, including long QT syndrome, Brugada syndrome, CPVT and arrhythmogenic cardiomyopathies. Additionally, Dr. Barth participates in a multidisciplinary clinic at Kennedy Krieger Institute providing Cardiology care to patients with muscular dystrophies and mitochondrial disease. Dr. Barth performs pacemaker and defibrillator implantation and complex catheter ablations for atrial and ventricular arrhythmias. His basic research lab explores the relationship between metabolic and arrhythmogenic ion channel remodeling in heart failure and myotonic dystrophy. Dr. Barth earned a combined doctor of medicine and doctor of philosophy from the Ludwig-Maximilians-University in Munich, Germany. He joined the Johns Hopkins faculty in 2016. He has been recognized with the First Prize for the Stanley L. Blumenthal Cardiology Research Award in Clinical Science in the Division of Cardiology at Johns Hopkins Hospital, and as a Young Investigator Award Finalist of the American Heart Association and Heart Rhythm Society. Dr. Barth is rated as an Advanced provider by MediFind in the treatment of Emery-Dreifuss Muscular Dystrophy. His top areas of expertise are Cardiomyopathy, Arrhythmias, Heart Attack, Cardiac Ablation, and Pacemaker Implantation.
Last Updated: 01/09/2026









